Happy Summer and a little Crap Gap to go with it?

Happy end of June (Almost) to everyone! Can’t believe that July is upon us already! Time, as usual, is up to no good and is doing nothing but flying by. Good Grief. 🙁

Yep, been over a week since my last post. What I am finding is that, wait for it… an excuse is imminent…, Summer is a hard time to keep to a schedule. How weird… right? I mean… I’m not working a formal job or anything, so all I should really have is time! At least… that’s what I tell myself. Then again, tennis camp, chores around the house, cheerleading camp, yard work, travel plans, fatigue days, dizzy days, lazy days… my excuses go on and on and on! 🙂 I’ll say it again… it’s my whole hearted intention to write something at least once a week! I’ll do my best!

Honestly folks, I haven’t posted in the last few days because I’ve been extremely tired, a bit dizzy and I’ve had this nagging little headache that reminds me of… don’t say it!!!… maybe it’s Crap Gap time? Remember, Crap Gap is an informal term that those of us taking Ocrevus use to describe how we feel when we’re about a month out from the next infusion. Many of us believe that as Ocrevus dissipates in our systems, that we start to experience negative side effects (ie Fatigue, Dizziness, Mobility issues, etc.). I’ve read quite a few blurbs on different sites where folks with MS have questioned their MS Specialist/Neurologist about the Crap Gap… only to hear that “It’s not a thing” (Im summarizing… bear with me). Man… bothers me, and I’m sure quite a few others, to hear a response like that. It must be in all of our heads! For sure!

I know I’ve written about Crap Gap before and although it seemed a bit more pronounced around my second infusion vs my third.. I can definitely tell something is a bit off. The dizzies are with me, fatigue is setting in and I’ve got a lingering headache that just seems to be with me all the time. The headache is not serious enough that I want to take an Advil or anything, but annoying nonetheless. Of course, the weather has definitely warmed up, but it hasn’t been the super hot summer that we’re used to in North Carolina… at least not so far. So, Im going to point my fingers at the fact my next infusion is about 6 weeks away and my body is starting to respond to the need for more Ocrevus. I don’t know… it’s easier to blame things on a gap of medicine vs thinking my nervous system is solely responsible for me not feeling super well. Oh well. Nothing to be done but grin and bear it! Right?

Posting information like this makes me wonder… sometimes… if someone without, or even with, MS thinks I’m just fussing and moaning or being a bit of a baby. When I say something like, “I’m going to point my finger at…” it’s not so much that I need something to BLAME for how I feel, but perhaps the assurance that the way I’m feeling will go away once I get more medicine… or when the weather is cooler… or when I’m not so tired… or or or. Sucks to be someone like me… at least once in while. I mean…. most of the time.. I’m pretty dang awesome! Ask my friends… they’ll vouch for me! 🙂

So, enough about me for the day! I’ll probably post late next week or early the following as it’s likely going to be a pretty darn busy week! I’ve received several comments over the past couple of weeks…. which is awesome and confirms that someone other than me and mom are checking this blog out! 🙂 Please keep the comments coming!

Have a great week and talk to you soon!

Steve