Happy Friday! Yep! It’s Friday, October 1st all day today! Couldn’t ask for a nicer day in Charlotte, NC… that’s for sure. Mostly sunny with temperatures in the high 70’s (Maybe low 80’s).. it’s absolutely beautiful outside! Hope that’s true for you as well!
The topic of the day is (Drum roll please)… dealing with MS and the Inconsistency of how you feel day-to-day! I actually thought the title for today’s post was pretty clever! Did you? I’m going to use that again at some point… “Consistently Inconsistent”. I feel like I’m being clever, but I’ve probably heard that phrase a million times somewhere else. I don’t want to take too much credit for it and improperly inflate my EGO! 🙂
Anyway… back to the topic… If you’ve read my recent posts you’ll know I’ve been feeling unusually “good” since my last Ocrevus infusion (Remember, Ocrevus is the disease modifying drug I am for MS). I’ve been exercising more vigorously, haven’t felt quite as fatigued and, in general, have been feeling pretty darn good. So, everything’s good… right? Well, YES and NO. How’s that for a response? What do I mean? Let me elaborate!
As I mentioned… my last infusion was just over a month ago and, surprisingly, I didn’t experience the usual side effects. In the past, the side effects include strong fatigue for two or three days and irritability and/or “grumpiness” for about two weeks. The grumpiness is, I have been told, associated with the steroids given as part of the infusion. The absence of side effects let me maintain my exercise routines after the infusion and, for some reason, exercising just felt easier! I was jogging/walking for longer distances and maintaining my time lifting weights! It felt great… almost like a “Runners high”… although I wasn’t running and I’m not really sure I believe in “Runners high”. 🙂 I started wondering if the last infusion had improved things a little bit, which would be A-Mazing! Right? It sure would!
BUT… not so fast! All those days of feeling good were awesome, BUT THEN late last week there was a bit of a change. My mornings still felt pretty good, however, fatigue started rearing it’s ugly head in the afternoons and basically stayed around until bed time. Also, the dizzy spells were back, especially last weekend, and that made things a bit more difficult than they had to be! It’s hard to put on a smiley face when you’re tired and dizzy, but when you’re spending time with family… you don’t want to be a downer! Right? 🙂
Fortunately, I can deal with being tired and dizzy as they’ve been a big part of my life for years. It was definitely disappointing for them to be back, when I had hoped they might be gone. It is what it is! I hope the title of today’s post makes a bit more sense now. I feel consistently good sometimes, but not so good at other times. Consistently Inconsistent! A good phrase that I think a bunch of folks with MS can relate to!
That’s where I’ll leave off today! Depending on where you live, this might be a great weekend to head to check out the Fall colors! Winter will be here too fast, so take advantage of things while you can!
Talk to you next week!
Steve
PS I am also now on Twitter! Follow me… I post a bit more there… 🙂
#1guywithms
#Ocrevus
#msdoesnthaveme
